Exploring the Lived Experiences and Coping Mechanisms of Unmarried Women with Polycystic Ovary Syndrome (PCOS) in Pakistan

  • Zahra Athar M.phil scholar
  • Nayab Javed University of the Punjab, Lahore, Pakistan
Keywords: Keywords: anxiety, emotional well-being, excessive hair growth, self-image, social stigma

Abstract

Abstract Views: 0

The current research aimed to demonstrate the lived experiences and coping mechanisms of unmarried women suffering from Polycystic Ovary Syndrome (PCOS) in Pakistan, given that it is the most prevalent endocrine disorder. Furthermore, the study also focused on how these women cope with PCOS, based on a phenomenological qualitative research design. The study utilized a qualitative research design comprising in-depth interviews analyzed through thematic analysis to understand the lived experiences of women with PCOS. Moreover, the perceptions regarding the cultural norms, societal expectations, as well as health information sources were also examined. The results revealed a multifaceted web of stigma, misinformation, and desire to be perceived positively by family and community. Additionally, the study outlined the strategies employed by these women to cope with excessive hair growth anxiety, ranging from medications, diet, and exercises, to using natural remedies. It also underscored the importance of familial support including the access to authentic information as it is helpful for these women to optimally self-manage their emotional well-being. The current study provided a better understanding pertaining to specific healthcare issues faced by unmarried women with PCOS in Pakistan. Moreover, it also enhanced the advocacy for the culturally appropriate and societal stigma targeted interventions to encourage the provision of relevant healthcare services. Furthermore, this study may contribute to new policy adjustments and improvements of healthcare services to enhance the PCOS vulnerable members’ conditions through raising awareness.

Downloads

Download data is not yet available.

References

Ahmad, S., Sumitra, M., & Chitra, V. (2021). Prevalence and role of melatonin on PCOS in its treatment using Herbal drugs. Research Journal of Pharmacy and Technology, 14(9), 5029–5033. http://doi.org/10.52711/0974-360X.2021.00877

Aslam, A., Khadija, S., Aslam, A., Shaukat, S., Irshad, A., & Tariq, S. (2022). The role of colour doppler imaging in the diagnosis of poly cystic ovarian. syndrome: Colour doppler imaging in PCOS. Pakistan BioMedical Journal, 5(2), 157–160. https://doi.org/10.54393/pbmj.v5i2.184

Azziz, R. (2021). How polycystic ovary syndrome came into its own. F&S Science, 2(1), 2–10. https://doi.org/10.1016/j.xfss.2020.12.007

Basirat, Z., Faramarzi, M., Chehrazi, M., Amiri, M., Ghofrani, F., & Tajalli, Z. (2020). Differences between infertile women with and without PCOS in terms of anxiety, coping styles, personality traits, and social adjustment: a case–control study. Archives of Gynecology and Obstetrics, 301, 619–626. https://doi.org/10.1007/s00404-019-05391-7

Dokras, A. (2022). Heart health in polycystic ovary syndrome: Time to act on the data. Fertility and Sterility, 117(5), 885–886. https://doi.org/10.1016/j.fertnstert.2022.03.014

Douglas, C. C., Norris, L. E., Oster, R. A., Darnell, B. E., Azziz, R., & Gower, B. A. (2006). Difference in dietary intake between women with polycystic ovary syndrome and healthy controls. Fertility and Sterility, 86(2), 411–417. https://doi.org/10.1016/j.fertnstert.2005.12.054

Duncan, W. C. (2014). A guide to understanding polycystic ovary syndrome (PCOS). Journal of Family Planning and Reproductive Health Care, 40(3), 217–225. https://doi.org/10.1136/jfprhc-2012-100505

Ekbäck, M., Wijma, K., & Benzein, E. (2009). “It is always on my mind”: Women's experiences of their bodies when living with hirsutism. Health Care for Women International, 30(5), 358–372. https://doi.org/10.1080/07399330902785133

Garad, R., Teede, H. J., & Moran, L. (2011). An evidence-based guideline for polycystic ovary syndrome. Australian Nursing Journal: ANJ, The, 19(4), 30–33.

Harris‐Glocker, M., & McLaren, J. F. (2013). Role of female pelvic anatomy in infertility. Clinical Anatomy, 26(1), 89–96. https://doi.org/10.1002/ca.22188

Herriot, A. M., Whitcroft, S., & Jeanes, Y. (2008). An retrospective audit of patients with polycystic ovary syndrome: The effects of a reduced glycaemic load diet. Journal of Human Nutrition and Dietetics, 21(4), 337–345. https://doi.org/10.1111/j.1365-277X.2008.00890.x

Huang, J., Liu, L., Chen, C., & Gao, Y. (2020). PCOS without hyperandrogenism is associated with higher plasma Trimethylamine N-oxide levels. BMC Endocrine Disorders, 20, Article e3. https://doi.org/10.1186/s12902-019-0486-9

Hoeger, K. M., Dokras, A., & Piltonen, T. (2021). Update on PCOS: Consequences, challenges, and guiding treatment. The Journal of Clinical Endocrinology & Metabolism, 106(3), e1071–e1083. https://doi.org/10.1210/clinem/dgaa839

Kerchner, A., Lester, W., Stuart, S. P., & Dokras, A. (2009). Risk of depression and other mental health disorders in women with polycystic ovary syndrome: a longitudinal study. Fertility and Sterility, 91(1), 207–212. https://doi.org/10.1016/j.fertnstert.2007.11.022

Khan, S. H., Rizvi, S. A., Shahid, R., & Manzoor, R. (2021). Dehydroepiandrosterone sulfate (DHEAS) levels in polycystic ovarian syndrome (PCOS). Journal of the College of Physicians and Surgeons Pakistan, 31(3), 253–257. https://doi.org/10.29271/jcpsp.2021.03.253

Nidhi, R., Padmalatha, V., Nagarathna, R., & Amritanshu, R. (2011). Prevalence of polycystic ovarian syndrome in Indian adolescents. Journal of Pediatric and Adolescent Gynecology, 24(4), 223–227. https://doi.org/10.1016/j.jpag.2011.03.002

Pal, R. S., Pal, Y., Chaitanya, M., Kumar, R., Tyagi, P., & Srivastava, P. (2024). An exquisite analysis on the significance of nutrient supplementation in the holistic management of poly-cystic ovarian syndrome. Current Women's Health Reviews, 20(6), 175–184. https://doi.org/10.2174/0115734048262284230927191823

Pitchai, P., Sreeraj, S. R., & Anil, P. R. (2016). Awareness of lifestyle modification in females diagnosed with polycystic ovarian syndrome in India: Explorative study. International Journal of Reproduction, Contraception, Obstetrics and Gynecology, 5(2), 470–476.

Pfister, G., & Rømer, K. (2017). “It's not very feminine to have a mustache”: Experiences of Danish women with polycystic ovary syndrome. Health Care for Women International, 38(2), 167–186. https://doi.org/10.1080/07399332.2016.1236108

Rahman, M., Rahman, F. T., Mallik, M. U., Saha, J., Rahman, M. M., & Azad, K. A. K. (2024). Metabolic dysfunctions in polycystic ovary syndrome. Journal of Medicine, 25(1), 68–77. https://doi.org/10.3329/jom.v25i1.70703

Saleem, B., & Sultana, A. (2023). Socio-psychological challenges of women having polycystic ovary syndrome. Global Sociological Review, 8(2), 315–324. https://doi.org/10.31703/gssr.2023(VIII-II).32

Sharma, S., & Mishra, A. J. (2018). Tabooed disease in alienated bodies: A study of women suffering from polycystic ovary syndrome (PCOS). Clinical Epidemiology and Global Health, 6(3), 130–136. https://doi.org/10.1016/j.cegh.2017.09.001

Scalzo, K., & McKittrick, M. (2000). Case problem: Dietary recommendations to combat obesity, insulin resistance, and other concerns related to polycystic ovary syndrome/response. Journal of the Academy of Nutrition and Dietetics, 100(8), 955–960. https://doi.org/10.1016/S0002-8223(00)00275-3

Smith-Tran, A. (2018). Muscle as medicine: An autoethnographic study of coping with polycystic ovarian syndrome through strength training. Qualitative Research in Sport, Exercise and Health, 10(4), 476–492. https://doi.org/10.1080/2159676X.2017.1366932

Taber, J. M., Leyva, B., & Persoskie, A. (2015). Why do people avoid medical care? A qualitative study using national data. Journal of general Internal Medicine, 30, 290–297. https://doi.org/10.1007/s11606-014-3089-1

Thomson, R. L., Buckley, J. D., & Brinkworth, G. D. (2011). Exercise for the treatment and management of overweight women with polycystic ovary syndrome: A review of the literature. Obesity Reviews, 12(5), e202–e210. https://doi.org/10.1111/j.1467-789X.2010.00758.x

Published
2024-06-12
How to Cite
Athar, Z., & Javed, N. (2024). Exploring the Lived Experiences and Coping Mechanisms of Unmarried Women with Polycystic Ovary Syndrome (PCOS) in Pakistan. Sociological Research And Innovation, 2(1), 88-108. https://doi.org/10.32350/sri.21.05
Section
Articles